The longitudinal study Kids-CAT took place from February 2012 until December 2014 and has been supervised by Prof. Dr. phil. Ulrike Ravens-Sieberer (University Medical Center Hamburg-Eppendorf).
The study was conducted in cooperation with Prof. Dr. Matthias Rose (Charité, Berlin), Prof. Dr. Ute Thyen (University Hospital Schleswig-Holstein, Campus Lübeck), Prof. Dr. Silke Schmidt (University of Greifswald) and Dr. Marcus O. Klein (University Hospital Schleswig-Holstein, Campus Kiel). The Kids-CAT Project was funded by the Federal Ministry of Education and Research (Bundesministerium für Bildung und Forschung, BMBF). Additionally, it has been supported by the German Association for Allergies and Asthma (Deutscher Allergie- und Asthmabund e. V., DAAB), the German Association for Diabetes (Deutscher Diabetiker Bund e. V.) and the Paediatric Network (Pädiatrisches Netzwerk, PAED-Net).
The Kids-CAT project aimed at developing the first German computer-adaptive test (CAT) for measuring Health-Related Quality of Life (HRQoL) in healthy as well as in chronically ill children and adolescents.
The study included the following steps:
1. development of the Kids-CAT instrument using large existing data sets (of the KIDSCREEN, BELLA and DISABKIDS studies);
2. evaluation of the reliability and validity of the Kids-CAT instrument in a group of n=300 chronically ill children and adolescents suffering from diabetes, asthma and rheumatoid arthritis;
3. standardisation of the Kids-CAT Instrument by using a representative sample of healthy children of n=1200.
Currently, the data are being processed in order to be analyzed. Information concerning upcoming publications will be available on this homepage.
The final Kids-CAT instrument will provide a methodologically appropriate screening of HRQoL in children which shall be implemented in routine paediatric care. It has been developed based on Item
Response Theory (IRT) facilitating an efficient, precise, reliable and valid assessment of HRQoL. The Kids-CAT software will then be available for wide applications in paediatric care and
The Kids-CAT project (University Medical Center Hamburg-Eppendorf, Germany) and the Paediatric PROMIS project (CHOP, Philadelphia, US) are closely collaborating.
The German Kids-CAT and the US paediatric PROMIS item banks were developed using similar quantitative methods (Classical Test Theory and Item Response Theory). The Kids-CAT item banks differ from the American ones in that, they have been built using large existing representative German paediatric norm samples (> 15000 children). The US paediatric PROMIS item banks were developed without such an initial data base, but grounded on an extensive qualitative item bank processing.
For more information please visit our website www.kidscat.org.
Contact person is Dana Barthel.